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care in the uk - a disgrace

Charity warns treatment of society’s most vulnerable youngsters is national scandal

Hundreds of disabled and non-verbal children have been sent home with injuries ranging from cuts and bruises on their faces, arms and legs to broken teeth in the last year in what one charity is calling a national child abuse scandal.

Children as young as two years old have lost teeth after being physically restrained and held down by adults for “playing aggressively with a toy car”.

Evidence from a nationwide survey reveals severely disabled, tube-fed children in wheelchairs being locked in “empty cupboards” for “crying when their dummy was taken” or “punished for being ridiculous”.

Experts warn the lack of training and understanding in nurseries and special schools has created what they describe as a “dangerous punitive mindset which sees distress as defiance, and control as care”.

Beth Morrison, who runs the charity Positive & Active Behaviour Support Scotland (PABSS), says new evidence heightens the need for statutory guidance, mandatory training and reporting of issues such as those called for in Calum’s Law, which is still at the Bill stage in the Scottish Parliament.

She said: “Our evidence-based survey of hundreds of incidents proves compulsory reporting and a duty of candour to report all incidents of restraint, seclusion and injury to parents is now a necessity.

“I’ve found it impossible not to weep uncontrollably at the sheer callousness of those who are supposed to teach and nurture our most vulnerable children.

“We are talking about extremely disabled, often non-verbal children either with learning difficulties or severe autism, being physically restrained, held down by adults, strapped down into harnesses or secluded in an empty ‘cupboard’ for issues like crying because their dummy has been taken away… our evidence proves the physical punishment of disabled children is still happening in every corner of Scotland in what can only be described as a national child abuse scandal.”

“Many were never told. Some were dismissed. Many parents and carers were threatened when they tried to speak out or even when they posted Facebook messages sharing their experiences.”

Scotland’s Children’s Commissioner, Nicola Killean, has repeatedly challenged the government over its lack of action on the scandal. Her No Safe Place report revealed widespread inconsistencies over the use of restraint and seclusion across Scotland and the failure to record incidents – and warned the Scottish Government was at risk of breaching its obligations under the UN Committee on the Rights of the Child (UNCRC) and the European Convention on Human Rights.

The UNCRC issued a directive two years ago demanding the abolition of isolation rooms and the introduction of statutory guidance.

But the Included, Engaged And Involved guidance issued by the Scottish Government in November last year was unenforceable, and their Fostering A Positive, Inclusive And Safe School Environment scheme was non-binding and failed to provide resources and staffing support.

Last month the Care Inspectorate raised significant concerns over the quality of care at Cardenden Primary School Nursery in Lochgelly, Fife, where staff were explicitly told to cease the use of inappropriate physical intervention on young children or their registration could be revoked.

Scottish Conservative Shadow Education Minister Miles Briggs said: “There’s no other way to describe this than a national child abuse scandal.”
 

Flagship death review programme had ‘unclear and limited’ impact. Review into LeDer programme has found its impact has been limited.

"At a national level, there was consensus that LeDeR’s impact on policy-making was unclear, and probably limited."

"At a local level, the impact of the programme was seen to vary greatly between CCGs and it was suggested that a statutory process would help LeDeR to be more impactful on driving service change."

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The 2023 LeDeR report still yet to be published. Already 9 months late. Won’t come out now until after parliamentary summer recess.

 
The 2023 LeDeR report still yet to be published. Already 9 months late. Won’t come out now until after parliamentary summer recess.


On Myles Scriven’s life and death (aged 31; entirely pevantable, caused by arrogance, neglect and discrimination)


 
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The White House care home in Chatham remains in ‘special measures’ after CQC rates service ‘inadequate’ again



It looks after up to 38 users, most of whom have dementia.

Inspectors from the Care Quality Commission (CQC) first visited the home in March, where they found it “smelled strongly of urine” and residents were sitting in “wet clothes”.

During the assessment, it was found in breach of the legal regulations relating to safe care and treatment, safeguarding, staffing and training, dignity and respect, the management of the home, and not informing CQC of incidents they had a legal requirement to do so.

A report detailing the outcome of the latest damning inspection was released today (July 17).

Commenting on its findings, CQC deputy director of operations in the south Serena Coleman said: “The provider wasn’t present during our inspection, and we saw that lack of leadership and accountability throughout the home.

“For example at our last inspection we found serious concerns with the home’s cleanliness. We found the strong smell of urine still remained in the reception area and two people’s bedrooms.

“Staff still weren’t always treating people with dignity and respect or meeting their basic care needs.”

In one instance, inspectors said they observed a member of staff kiss a person on the lips in a communal lounge.

But, according to the resident’s plan, they lacked capacity and would not have been able to consent to this “intimate act” taking place.

The member of staff and other colleagues that were present in the lounge had not recognised this was inappropriate and a potential act of abuse.

Ms Coleman added: “People looked unkempt, had greasy hair, were wearing mismatched clothes and someone was left waiting for more than 45 minutes after requesting support to go to the bathroom.

“Staff didn’t always record when people had taken baths or showers, and references to people’s distressed behaviours were undignified.

“One staff note referred to a person being very annoying throughout the night, which is no way to talk about someone you’re providing care for.”

Inspectors found people were not safe and were at risk of avoidable harm.

In the report, they say there was a lack of information on what actions had been taken to mitigate further incidents from occurring.

“Staff still weren’t always treating people with dignity and respect or meeting their basic care needs...”

In one case, a relative told the CQC they were not always given information on how their loved one sustained an injury, and said the resident had suffered a large bruise on their shoulder, but staff did not know how it happened.

Inspectors also found the home to have a “closed culture” and was a poor work environment where leaders spoke to colleagues in ways which were not respectful.

Ms Coleman said: “One senior staff member requested a colleague to make someone a cup of tea and appeared to enjoy the pressure it would put on staff to inappropriately use the emergency call bell for this.

“When staff had raised concerns about senior staff members’ performance, leaders didn’t take robust action to address this.”

“We have told The White House where immediate and widespread improvements are needed and have used our regulatory powers by keeping them in special measures. We’ll continue to closely monitor the home to keep people safe.
 
'My disabled son was punched' - how a CCTV error exposed major abuse scandal



When Glynn Brown was told that his severely disabled adult son, Aaron, may have been assaulted by staff at a psychiatric hospital, he was shocked and suspicious.

He wanted to know exactly what had happened, but could not ask Aaron, who is non-verbal and whom he describes as having the mental age of a two-year-old.

Glynn was told there was no video evidence because CCTV cameras, installed throughout Muckamore Abbey Hospital six months earlier, had never been switched on.

But this was far from the case.

In fact, what police officers found when they visited the hospital in September 2017, triggered the UK's largest adult safeguarding investigation and made the hospital one of the nation's biggest ever crime scenes - according to data released by the police.

Unbeknown to staff, the CCTV cameras had been mistakenly left running for the six months since their installation, according to the Police Service of Northern Ireland (PSNI).

A staggering 300,000 hours of footage was discovered - equivalent to 34 years' worth. It revealed not only the alleged assault on Aaron, but hundreds of other incidents carried out by hospital staff.

However, almost eight years after the discovery, no cases have come to trial and the hospital has not been closed. A separate public inquiry is also yet to report back.

What is more, the patients' families still have not been allowed to see the CCTV footage.

descriptions of what the footage shows include accounts of patients facing appalling cruelty and physical abuse, and being ignored while seriously unwell. They describe:
  • Vulnerable young adults being punched, kicked, dragged across floors, tipped off furniture and having balls kicked at them
  • Possessions being taken away, shoes being dangled from one patient's ears and crisps packets pushed into another's face
  • Emotional abuse, including patients with severe learning disabilities being provoked into a reaction and then restrained and placed in seclusion

Families say they have been told they are unable to view the footage to prevent any prejudice of criminal investigations.

"We're left to conjure up these images in our own mind as to what has happened to our loved ones," Glynn told us.

The task of reviewing the footage was originally undertaken by Belfast Health Trust, even though it was responsible for managing Muckamore Abbey.

It watched samples of the footage from eight different cameras, at up to eight times normal speed - an "impossible" task, according to one of the team.

Hearing fresh horrifying details about Aaron's treatment became a regular occurrence for his father.

Every Friday for months, Glynn received a grim phone call from the reviewers, detailing new incidents. He says he lost count at about 200.

"I was told there were videos of him being kicked, punched, trailed across the floor with his genitals exposed," he says.

Eventually, the PSNI seized all the footage themselves and appeared astonished by what they found. After an early police review of the CCTV, officers said in just one of four wards with cameras being investigated, they had identified 1,500 "crimes".

One of the most striking features of the descriptions of footage obtained by the BBC is the scale of staff neglect. Patients are frequently described as being ignored - even when seriously unwell.

According to the descriptions, one was locked in a room for 18 hours on one day, and frequently left without access to a bathroom, despite being incontinent.

Muckamore Abbey is the largest systemic abuse case uncovered in the UK, according to Prof Andrew McDonnell, a clinical psychologist, who advised BBC Panorama on a 2011 investigation into abuse at Winterbourne View, a private hospital near Bristol.

"The sheer volume and scale of it - it dwarfs anything I've ever seen before," he says.

Prof McDonnell says he can't understand why there is such little public awareness of the scandal outside Northern Ireland.

A public inquiry, which sat from 2022 until March 2025, is expected to deliver its final report and recommendations later this year.

However, it has attracted criticism from the families of patients, who do not think that hospital managers have been rigorously cross-examined.

Glynn says it feels like nobody is to blame and nobody will be held culpable.

"We expected a robust interrogation," Glynn says. "We thought we'd find out all the answers to all our questions."

Disappointment has also been expressed that the inquiry did not call any of Northern Ireland's health ministers to give evidence - unlike the Post Office Inquiry where a minister was questioned over his refusal to meet campaigner Sir Alan Bates.

The criticisms are echoed by public health expert Dr Gabriel Scally, who has led a number of reviews into health service failures, including an NHS panel on Winterbourne View.

He agrees that managers have not been sufficiently held to account at the inquiry: "Imagine that the people representing the families and the patients cannot directly ask questions to the witnesses - I find that astounding."

Dr Scally also says the inquiry has been needlessly protracted and has lost its "sense of outrage".

More than 180 witnesses had given evidence, including senior figures, a spokesperson said, and the decision not to call any ministers was the subject of a judicial review which had been dismissed.

Senior officials from Belfast Health Trust told the inquiry they did not have concerns about Muckamore prior to the CCTV footage being found.

But the BBC has learned that three meetings were held between a health watchdog and the Trust over concerns about the hospital in the three years before the discovery.

More than 200 substantiated reports of abuse were also recorded there in 2014, according to inspections by the Regulation and Quality Improvement Authority

Another parent, Catherine Fox, says she had repeatedly complained about the treatment of her daughter, Alicia, before the CCTV footage was discovered.

She says Alicia was being kept in seclusion - something meant to be used only as a last resort - for hours on end, in a very small room. There was no bathroom and the buzzer to call staff did not work.

"I would say it was a form of torture, and it was also a form of instilling fear, and no-one else will convince me of anything different," she says.

Catherine was so "horrified" she took her complaints to a Stormont health minister, who replied to say her concerns were a matter for the health trust.

122 people have been reported to Northern Ireland's Public Prosecution Service (PPS). To date, 38 people have been arrested - and some have gone on to plead not guilty. PSNI said it submitted its first file to the PPS more than five years ago.

The PPS said 15 suspects are currently before the courts and that the progress of cases is also the responsibility of the defence and judges.

Glynn is still frustrated that nobody yet has been held responsible for the events at Muckamore Abbey, but he carries on campaigning for justice.

"Once the world sees the footage," he says, "there will be a profound understanding of how bad and malign the scandal is."

Largest safeguarding inquiry in this country, largest systemic abuse investigation too, apparently the largest crime scene as well.

Silence from the Left.

This is part of a larger pattern of looking the other way (or open hatred) when it comes to those who are the bottom of our society (and the incarceration/torture/rape/murder of such people) Whilst this is for explicable reasons - the (very obvious) aspie supremacy of the Left, and its (also very obvious) material interests, it does blow a massive whole in their claims of ‘antifascism/disability allyship/solidarity (with the most marginalised no less)/etc etc. Plus it makes it very easy for disabled people to hate the Left (which they do) and for RW populists to exploit such hatred (which they are very good at)

Someone may storm in with accusations of incoherent bigotry/personal grievance/blah, but they’d only be proving my point, and making it harder for those of us who are honest about who is at the bottom of our society and what is being done to them to talk about this in an ostensibly left wing space, and making it easier for the Right to exploit disabled people and their actual allies
 
Largest safeguarding inquiry in this country, largest systemic abuse investigation too, apparently the largest crime scene as well.

Silence from the Left.

This is part of a larger pattern of looking the other way (or open hatred) when it comes to those who are the bottom of our society (and the incarceration/torture/rape/murder of such people) Whilst this is for explicable reasons - the (very obvious) aspie supremacy of the Left, and its (also very obvious) material interests, it does blow a massive whole in their claims of ‘antifascism/disability allyship/solidarity (with the most marginalised no less)/etc etc. Plus it makes it very easy for disabled people to hate the Left (which they do) and for RW populists to exploit such hatred (which they are very good at)

Someone may storm in with accusations of incoherent bigotry/personal grievance/blah, but they’d only be proving my point, and making it harder for those of us who are honest about who is at the bottom of our society and what is being done to them to talk about this in an ostensibly left wing space, and making it easier for the Right to exploit disabled people and their actual allies
Heart emojis seems inappropriate and like emoji seems inadequate and I haven't got the words but thank you so much. We MUST not turn away.
 
There’s so much hope as well, so much opportunity to build working class self organisation that is multi racial (eg black and white families of Lifeways and The children’s trust), across sectarian divide (eg catholic and Protestant families coming together at Muckamore), across identities and identifications (care staff are some of the worst paid and worst treated, most impoverished and precarious members of the national workforce, and those who do speak up on behalf of their - also impoverished and precarious - service users will be punished for doing so). So much opportunity to demonstrate the Left means what it says and to steer public anger and fear away from ‘Deform Uk’ (I mean FFS lads) and to stand alongside people who really could do with a a bit of solidarity.
 
ITV has done an episode (short podcast) of "What you need to know" about people with learning disabilities and autism locked up in hospitals, about 2,000 people across NHS England. These people should not be trapped in hospital for no good reason, it's horrific, and there should be uproar about this.

"They are there because of their disability and people might think that is so draconian, that cannot happen in the UK any more but that is exactly what's happening."

https://www.itv.com/news/2022-02-24...s-podcast-with-vital-information-and-analysis
(I can't seem to link to the individual episode but it's currently the most recent.)

There's a report on the ITV website:

Josh Standish is 21 and has spent his entire life in a hospital.

According to his parents, he suffered physical and mental abuse at the hospital which was eventually closed down. "He's gone through absolute hell," Sara said.

"I don't think anybody will ever realise unless they've actually seen it.

"For one person to go through that much trauma in his life; it's so sad."

When ITV News first met Josh nearly two years ago, he was at a hospital closer to home.

Staff declared he was ready to be discharged but there was no adequate community care in place and Josh became trapped in the system.

https://www.itv.com/news/2025-07-14/familys-hurt-as-thousands-with-learning-disabilities-locked-up
 
The government have been warned that the Mental Health Bill will breach the UN Convention on the Rights of Persons with Disabilities (UNCRPD) if it becomes law in its present form. The UN’s committee on the rights of persons with disabilities has written to the UK government to raise serious concerns.

It said it had “received credible information” that indicated such concerns.

The bill – based on draft legislation drawn up by the last Conservative government – has passed almost unnoticed through the Lords and the Commons, despite significant concerns raised by disabled campaigners.

They believe it falls far short of the fundamental reforms needed to ensure full human rights for disabled people, and that it will not stop them being subjected to forcible detention and degrading treatment.

UN asks serious questions of ministers after activists highlight ‘discriminatory’ mental health bill
 
Tim Hull, 56 years old, is exhausted from fighting the NHS for the care he needs. He has made the decision to stop taking his life-saving medication because of his poor quality of life. Because of the lack of care and support.

Tim Hull can point to many achievements during his 56 years. He's run his own handyman business and housed Ukrainian refugees for two years. He's even been in the Guinness Book of Records: at nearly 7ft in height, he and his brother were the UK's tallest twins for almost two decades.

It is the battles to get the health and care support he needs which have driven him to make the desperate decision, says Tim. He feels abandoned by health professionals, has been moved from one waiting list to another, has not been provided with the right equipment to help him and has been bed-bound for nearly seven months.
In February, he stopped taking the medication that prevents his kidneys from failing. They are now beginning to give up and he knows he has months, if not weeks, to live.

"I don't feel that things are going to get any better than this," he tells BBC News. "I just feel [ending my life] would be a better option than lying in bed 24 hours a day."

Over the past two years, BBC News has been contacted by the families of more than 250 people with serious disabilities or illnesses about their struggles to access health and care services.

I’ve stopped life-saving medication says man exhausted by fight for NHS care
 
Ruth Szymankiewicz was a 14 year old girl who died after being left alone, though she was supposedly on constant watch, by an agency worker who had given a false name.

The coroner said: “The agency had purported to interview [the support worker], had apparently checked his identity documents and sought to train him by putting him through a day or day-and-a-half course, much of which was e-learning. Those processes were the norm and were sufficient to enable the hospital to employ this person."

Ruth's parents have raised other serious concerns about their late daughter's treatment.

While being treated in hospital in Salisbury, a nasogastric feeding tube was wrongly inserted into her lung, leaving her requiring treatment in intensive care.

It was deemed she needed to be detained under the Mental Health Act but there was no psychiatric hospital bed near her home and she was sent more than 70 miles away to Huntercombe.

In her statement, Kate Szymankiewicz said she felt she and her husband lost their parental rights when Ruth was detained under the Mental Health Act.

Szymankiewicz said her daughter once asked if she needed to hurt herself so she could go to another hospital. On one visit her parents were shocked that she had two black eyes and significant bruising. Staff could not say how this happened.

She said: “Our experience of the care Ruth received was terrible. She was managed, contained and not helped. Our belief is the things Ruth had to endure on a daily basis would have felt like torture.

The coroner said there had been two “unfavourable” Care Quality Commission reports on Huntercombe, which was run by the company Active Care Group. He said the hospital had closed.

Girl, 14, died at psychiatric hospital after agency worker with false ID left her unwatched, inquest hears
 
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Ruth Szymankiewicz was a 14 year old girl who died after being left alone, though she was supposedly on constant watch, by an agency worker who had given a false name.

The coroner said: “The agency had purported to interview [the support worker], had apparently checked his identity documents and sought to train him by putting him through a day or day-and-a-half course, much of which was e-learning. Those processes were the norm and were sufficient to enable the hospital to employ this person."

Ruth's parents have raised other serious concerns about their late daughter's treatment.





Girl, 14, died at psychiatric hospital after agency worker with false ID left her unwatched, inquest hears

The inquest into the death of Ruth Szymankiewicz, aged 14, has found that she was unlawfully killed.

The jury in Beaconsfield heard that the ward Ruth was on was habitually severely short-staffed and relied heavily on temporary agency staff like [the staff member using a false identity who left her unwatched].

Ruth’s parents, Kate and Mark Szymankiewicz, a GP and a consultant surgeon, claimed at the inquest that Ruth never received the therapeutic care she needed.

They were devastated that the unit was more than 70 miles from their Wiltshire home, leaving Ruth isolated and desperate.

Though Ruth died in 2022, health experts told the Guardian that many of the issues around the use of agency staff and the shortage of psychiatric intensive care units (PICUs) for children and young people was still a huge problem.

Andrew Molodynski, a consultant psychiatrist at Oxford health NHS foundation trust, said there was a “gap in accountability” over the training and vetting of agency staff.

The charity Inquest [...] said: “The focus has fallen on individual failures, not the deep-rooted issues plaguing Huntercombe and children’s mental health services nationally. Until we face those head-on, more children like Ruth will die.”

Girl left unwatched by agency worker at psychiatric unit was unlawfully killed, inquest finds
 
"agency worker" somewhere like that. No way. It's time people like that were paid a decent wage so as agency workers would not be necessary.

Even on NHS psych wards there are loads of agency staff, partly because the work is so gruelling that turnover of substantive staff is high and long-term absences for illness and stress are common. Agency staff are often from a different city so won't know the ward or the patients at all. And an agency HCA can often cost the hospital more per shift than a nurse or a junior doctor.
 
My mum spent the last few months of her life in a care home....it was pretty good, the staff and the manager were very pleasant and were doing their best, mum was treated fairly well.....the owner of this home was already a sucessful business man in a totally different arena and has a chain of care homes...care homes are now a cash cow, they are not run as primarily a service but as a means to make massive profit and imo this is completely wrong....it's no suprise workers are paid shit wages....looking after elderly people, a good proportion of whom are suffering health issues and dementia, is a hard job, it shouldn't be being done by people who have no experience or desire to do this work...good pay and conditions might just attract those who actually want to do this work and it should be valued by all of us...it shouldn't be left to those who's main priority is profit. This is going to be a even more massive issue, we are already a top heavy population, birth rates are dropping, people live longer, it should be a service managed by the state imo,not left to profit driven, greedy people.
 
Even on NHS psych wards there are loads of agency staff, partly because the work is so gruelling that turnover of substantive staff is high and long-term absences for illness and stress are common. Agency staff are often from a different city so won't know the ward or the patients at all. And an agency HCA can often cost the hospital more per shift than a nurse or a junior doctor.

I used to have to see clients in psych units occasionally and I'm not at all surprised there's a high turnover of staff. It's a really tough job and a very challenging atmosphere to work in. A psych nurse friend jacked in his NHS job to work in a prison hospital, which he described as "a much more caring environment to work in".
 
People with learning disabilities and autism in England are dying almost 20 years younger than the rest of the population, a long-awaited report has said.

The annual mortality review commissioned by NHS England was originally meant to be published last year but faced repeated delays.

It found 39% of deaths of people with learning disabilities and autism were classed as avoidable in 2023, almost twice as high as the general population.

The latest report found 37% of deaths of people with learning disabilities or autism involved some form of delay in care or treatment, while 28% reported instances where diagnosis and treatment guidelines were not met.

David Lodge, 40, lived with multiple learning disabilities including autism, dyspraxia and dysarthria, which prevented him speaking.

In January 2022 he was taken to Hull Royal Infirmary after he was found severely dehydrated on the floor next to the body of his father Peter who had collapsed and died unexpectedly.

His sister Dr Keri Lodge, a consultant psychiatrist, said there was an "overwhelming lack of urgency" when her brother arrived at hospital.

"Any other 40-year-old man who had not drunk or eaten anything for days would be treated very quickly but with David there was none of that," she said.

"There was just this sense of: 'We will put you in this side room and keep you away.'"
A later inquest heard there were multiple failings in David's care.

He was not offered pain relief, basic examinations were not carried out, and he was transferred to an acute admissions unit instead of intensive care, where he died hours later.

"They were side-tracked by the fact he had a learning disability," said Dr Lodge.
"I think he would have been treated very differently if that wasn't the case and it's so hard to live with that knowledge."

 
Eddie Cassie was learning disabled. He needed 24-hour care to help him eat, drink and take medication.

In May 2023, he had a fall at his care home and was admitted to hospital, but it wasn't the fall that killed Eddie, but a lack of care in hospital.

Eddie died in June 2023 from aspiration pneumonia, an infection caused by fluid or matter passing into the lungs.

This was caused by nurses feeding Eddie jelly, despite it being repeatedly highlighted as a food not to be given as it carried a high risk of aspiration due to Eddie's dysphagia, a choking condition.

Teresa and Mary, Eddie's sisters, told ITV News how their brother was neglected due to his learning disability and was powerless to do anything.

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"He was declining so rapidly, he didn't understand what was happening. You could see he was really ill, he didn't respond, he was semi-conscious and drowsy," said Mary.

"My sister wiped his mouth because it seemed there was something on his lips, and a whole paracetamol fell out.

"It was neglect," said Teresa.

"It was a lack of understanding of his condition. People didn't take the time to learn about him and understand what his needs were, to keep him safe.

"Eddie was a lost voice."

In July 2025, a coroner ruled that Eddie died through neglect - his death was wholly avoidable.

The latest report was due to be published in 2024, but was delayed due to what the Department of Health called "data issues".

ITV News has heard from sources close to the programme that staff face potential redundancies, and the upcoming abolition of NHS England is causing concerns about the report's future


Eddie Cassie

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Ethnic minorities with a learning disability die even younger, at 56.9 years of age, for Asian people, the average age of death was 43.2.

That is incredibly young compared to the general population, who live on average to 82.

Rahima Begum, 28, has a learning disability and cerebral palsy. She is cared for at home by her mum in East London. She told ITV News she is fearful every time she needs medical treatment.

07f6826f-ff6a-4f30-9d15-59c8de10da5b.png
Rahima Begum, 28, has a learning disability and cerebral palsy.Credit: ITV News
When she had to go to the hospital for a chest infection, she said: "I was constantly fighting for respect.

"One time, a doctor was speaking to my sister, and I was awake. He told her that she should contemplate letting me go because of my quality of life. This was so upsetting to hear because I was right there.

"It felt like they had just given up on me and that I was invisible. Also, the fact that he didn't respect me enough to speak to me or involve me. Felt like I was not a person but a thing. This was not a one-off.

"Often, doctors and nurses would not talk to me directly and assume I would not understand.

"The NHS is not built to look after people with a learning disability the way it needs to. Disabilities are complex and unique, so treatment should be tailored to them. One size fits all approach does not work."



.

 
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[Content warning for sexual assault and killing]

A woman who died after being sexually assaulted in hospital following a stroke was unlawfully killed, the coroner for Blackpool and Fylde has concluded.

Valerie Kneale, 75 and from Poulton-le-Fylde in Lancashire, spent four days at Blackpool Victoria Hospital before her death on 16 November 2018.

Despite staff noticing extensive bleeding after Mrs Kneale's death, suspicions were not immediately raised. This meant vital evidence was lost, and her attacker has never been identified.

The inquest heard the true circumstances of her death only emerged two-and-a-half weeks later during a post-mortem examination.

It was only carried out thanks to an unrelated police investigation into mistreatment and neglect on the hospital's stroke unit.

Blackpool hospital sexual assault victim 'unlawfully killed'
 
People with learning disabilities and autism in England are dying almost 20 years younger than the rest of the population, a long-awaited report has said.

The annual mortality review commissioned by NHS England was originally meant to be published last year but faced repeated delays.

It found 39% of deaths of people with learning disabilities and autism were classed as avoidable in 2023, almost twice as high as the general population.

The latest report found 37% of deaths of people with learning disabilities or autism involved some form of delay in care or treatment, while 28% reported instances where diagnosis and treatment guidelines were not met.

David Lodge, 40, lived with multiple learning disabilities including autism, dyspraxia and dysarthria, which prevented him speaking.

In January 2022 he was taken to Hull Royal Infirmary after he was found severely dehydrated on the floor next to the body of his father Peter who had collapsed and died unexpectedly.

His sister Dr Keri Lodge, a consultant psychiatrist, said there was an "overwhelming lack of urgency" when her brother arrived at hospital.

"Any other 40-year-old man who had not drunk or eaten anything for days would be treated very quickly but with David there was none of that," she said.

"There was just this sense of: 'We will put you in this side room and keep you away.'"
A later inquest heard there were multiple failings in David's care.

He was not offered pain relief, basic examinations were not carried out, and he was transferred to an acute admissions unit instead of intensive care, where he died hours later.

"They were side-tracked by the fact he had a learning disability," said Dr Lodge.
"I think he would have been treated very differently if that wasn't the case and it's so hard to live with that knowledge."




Researcher Richard Keagan-Bull, who has a learning disability and worked on the study, said: “People are still dying quite young in hospitals and are not getting the right care.

“It could be me, or it could be someone I know. These deaths must be taken seriously.”

A Local and National Issue​

For communities already affected by health inequalities linked to poverty, poor housing and limited access to services, the findings carry particular weight.

Families here are often left fighting to secure even basic support.

NHS England has pointed to progress, including staff training and the rollout of digital “flags” to identify patients with additional needs.

But campaigners insist that improvements remain too slow.

Government Response​

Health Minister Stephen Kinnock has called the life expectancy gap “unacceptable” and pledged further changes.

Yet for many families, the pressing concern remains whether reforms will come soon enough to save lives.

Behind every statistic is a loved one, neighbours and friends within our own communities.

Campaigners warn the fight for healthcare equality is not an abstract issue – it is happening here, and it demands urgent attention.

 
Sara Pickard, a community councillor who has Down's syndrome, said the number of avoidable deaths and the difference in life expectancy was shocking.

Ms Pickard, from Cardiff, said her experiences of healthcare were generally good, but she knew that was not the case for everyone with a learning disability, adding some of her friends with learning disabilities had died premature deaths.
"One was younger than me. It's really sad to think," she said.

Ms Pickard said people in power needed to properly engage with people with learning disabilities.

"Annual health checks are great but at the same time, it can seem a tick box exercise," Ms Pickard said.

She said reasonable adjustments in healthcare settings, including learning disability liaison nurses, helped.

Dawn Cavanagh’s son Jack, 22, has a severe learning disability and lives in residential care.

On one occasion Jack became really ill.
Dr Cavanagh said her concerns were dismissed and it took three weeks before he was finally taken to hospital.

"By the time he got there, his appendix was completely burst, he had a blocked bowel, it was twisted. He was in a real mess," she said.

Dr Cavanagh said Jack was now fine, but it took him a long time to recover both physically and psychologically.
She said professionals looked at Jack's behaviour rather than his symptoms - something known as diagnostic overshadowing - which meant there was a delay in getting appropriate help.

Dr Cavanagh said there was an unacceptable indifference towards the lives of people with learning disabilities.
Despite numerous reviews and scandals over the years, she said nothing had changed and there was no accountability.
"What that tells me as an academic and as a mother, is that my son's health and life doesn't matter, which is a very painful conclusion," she said.
"This is a group of people who are being deeply wronged.
"It makes me ashamed of the society in which I live."
In 2019-20 Dr Cavanagh researched how effective the annual health checks were for people with learning disabilities.
"Of the 12 people I interviewed, two have already passed away and they were in their 50s," she said.


 

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Foster was jailed in August 2023 for 10 weeks and ordered to pay £200 compensation to the boy, who has additional needs, after he was convicted of battery at Lancaster Magistrates' Court.

The panel read details of a police report that said he grabbed the boy, known as Pupil A, "by the shoulder of his coat roughly and pushed him into the chair, grabbed him by the jacket and pushed him against the corner of the room near the door".

The report said that it appeared he ‘hit him against the wall repeatedly, even though Pupil A had ‘not offered any violence’.

Mr Foster accepted that he ‘acted outside of the prescribed physical intervention protocols when removing Pupil A from the classroom’, but the panel concluded that teachers must treat students ‘with dignity, building relationships rooted in mutual respect, and at all times observing proper boundaries appropriate to a teacher's professional position’.

The panel report concluded: "Bearing in mind Mr Foster was an experienced teacher in that setting who undertook regular training, the panel considered the risk of repetition of such behaviour by Mr Foster to be high."
 
A review into alternative learning provision commissioned by the council found a catalogue of failings, and a report by Ofsted and the Care Quality Commission found “significant areas of weakness in the local area’s practice”. “Parents and carers are overwhelmingly condemning of the Send system in Bristol because of the experiences they have had,” the regulators said.

A July 2022 article in the Bristolian, a self-proclaimed “scandal sheet”, published a leaked cache of emails and a spreadsheet of “combative” social media posts that showed officials in the council’s department for children, families and education department had collated examples of social media criticism by Smith and other parent carers.

One official says they are “working hard to uncover some concrete evidence” and lists a number of examples of social media posts, as well as revealing they had been trawling personal photos of some of the members of the parent carer forum.

In one line of the email, the official says: “External comms deduced this is [redacted] as image is the same as wedding photos on [redacted]’s personal Facebook site.”

In another email, an official refers to Smith’s “duplicity”.


She says: “It was personal, critical stuff … They were just so full of themselves. It’s almost like they had this little bubble where they thought they were really important.”

The council conducted an internal “fact finding” mission in August 2022, which found there had been no “systematic monitoring” of social media – an exercise that Smith and others called a whitewash.

After a vote by its children and young people policy committee, however, the council announced last month that it would commission an independent investigation into the “historic monitoring of the social media accounts of parents and carers of Send children”.


 
The £3bn children’s homes market, which is increasingly dominated by private firms, some funded by private equity, is “dysfunctional” and too often fails to deliver a good service for youngsters or value for money, a National Audit Office (NAO) report said.

In the most extreme instances – likely to involve children with complex needs who require 24-hour supervision by multiple staff – councils had been charged up to £63,000 a week (£3.3m a year) for a single placement, the NAO said.

Privately owned care firms ramped up fees above the rate of inflation, with the biggest providers enjoying average annual profit rates of 22.6% a year as they took advantage of spiralling demand for care, insufficient places and staff shortages.

Despite the increase in spending, too many placements failed to meet individual children’s care requirements, the report said. Unsuitable placements were common, with half of youngsters placed more than 20 miles from their families, and one in seven experiencing three or more different placements in a year

The lack of suitable residential care places meant four out of five councils placed children with complex needs in illegal care facilities, the NAO said. Official figures show the number of children placed in so-called unregistered homes rose from 147 in 2020 to 982 in 2024

Of the 4,000 registered children’s homes in England, 84% are privately owned. NAO analysis found seven of the 10 biggest private providers were ultimately owned or part-funded by private equity firms. These are often loaded with high levels of debt, heightening the risk of market instability.

Although the government has promised to tackle “excessive profits” in the children’s residential sector, the NAO says progress in making changes has been slow, and ministers have yet to set out a clear vision of how it would achieve this.

According to the NAO, many large private providers’ “complex ownership arrangements” mean it is difficult to identify excess profits or what constitutes a “reasonable price” for a placement, making it hard to introduce a profit cap.

 
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